Author + information
- Jennifer Gerardina,b,
- Cheryl Raskind-Hooda,b,
- Trenton Hoffmana,b,
- Andrew Wella,b,
- Fred Rodrigueza,b,
- Andreas Kalogeropoulosa,b,
- Carol Hoguea,b and
- Wendy Booka,b
Background: Transfer of congenital heart disease (CHD) care from the pediatric to adult setting has been identified as a priority and is associated with better outcomes. Many CHD patients may fail to transfer. The goal of this study was to assess the percentage of CHD patients who transferred out of pediatric care to appropriate ACHD care.
Methods: We studied CHD patients age 16-30, primarily living in five metropolitan Atlanta counties, initially seen at least once in 1 of 3 pediatric Georgia healthcare systems during 2008-2010. We analyzed whether these CHD patients transferred to adult care during 2008-2015, and whether the adult provider was an ACHD cardiologist.
Results: Among 1,514 pediatric patients, 23.7% [(358/1514)*100] transferred into an adult health care system; distribution of adult providers seen is presented in Table 1. Only 19.7% appropriately transferred care to an ACHD cardiologist [(299/1514)*100], with an average of 14.4 months between last pediatric visit and first ACHD visit. 6% of those who transitioned to an ACHD provider later returned to see a pediatric provider at least once.
Conclusions: The majority of ACHD patients do not transfer to ACHD care. Those that successfully transfer do so at an appropriate interval. Recommendations from health care providers have been shown to be a significant reason for patients to seek ACHD care. Adult health care providers, including cardiologists, should be alerted to the need for screening patients for CHD and transferring care to ACHD providers.
Poster Hall, Hall C
Sunday, March 19, 2017, 9:45 a.m.-10:30 a.m.
Session Title: Redefining the “F” Word
Abstract Category: 9. Congenital Heart Disease: Adult
Presentation Number: 1270-013
- 2017 American College of Cardiology Foundation